Journey with Hope: Studies- U of M

Here is a link to some new studies that are being done at the University of Michigan for children with Cerebral Palsy.

Special Child

You weren’t like other children,
And God was well aware,
You’d need a caring family,
With love enough to share.
And so He sent you to us,
And much to our surprise,
You haven’t been a challenge,
But a blessing in disguise.
Your winning smiles and laughter,
The pleasures you impart,
Far outweigh your special needs,
And melt the coldest heart.
We’re proud that we’ve been chosen,
To help you learn and grow,
The joy that you have brought us,
Is more than you can know.
A precious gift from Heaven,
A treasure from above,
A child who’s taught us many things,
But most of all - “Real Love”
by Sharon Harris

Helpful Books

** 1. More than a Mom- Living a Full and Balanced Life When Your Child Has Special Needs- by Amy Baskin and Heather Fawcett http://www.morethanamom.net/
**2. The Late Talker by Lisa Geng
**3. The Out-of-Sync Child by Carol Stock Kranowitz, M.A.
4. Chicken Soup for the Soul- children with Special Needs
5. Married with Special Needs Children by Laura Marshak Ph.D, Fran Pollock Prezant M.Ed.
6. Sign, Sing, and Play by Monta Z. Briant
7. (Great for children of all ages to teach about differences- sung to country music also)- Don't Laugh At Me by Steve Seskin and Allen Shamblin
** Excellent Books

What We've Done So Far....

2 MRI's
4 EEG's
Accepted the fact that she needs Special Education services
Advocate for her
Aimed to keep the family as normal as possible
Asked for help when needed from family and friends
Asked other parents for opinions on schools, doctors, and therapists
balance boards
Brushing Therapy
Contacted Early Intervention - at 4 months old
cried (and still do)
Dafo's
EKG- to check for heart muscle weakness due to hypotonia- found a murmur
Enjoy her
Epsom Salts baths to get rid of toxins
eye exams
Finger Crayons
Fish Oils
Fought not to have her special education certification changed
Found a Developmental Pediatrician
Found a great Neuro Muscular Doctor
Found a great Neurologist that will answer our questions via email
Genetic Testing
glasses
Hand Weights
hip x-rays
Incline work
joined newsgroups
Joint Compression
Kept good files on all appointments and tests done
LOVE her
Made a tough decision to keep working full time- great insurance for Natalie's therapies
Natalie wore a Benik brace for core stregnth for months
Occupational Therapy
Oral Motor Therapy
Orthopediac Doctor
Orthopedic Inserts
Orthopedic Surgeon
P.E.C.S- picture exchange cards
Phenobarbitol- seizure medication age (3-12 months old)
Physical Therapy
Pushed for testing to be done
Quit asking why this happened
Reasearched Preschools
Researched everything (almost too much)
Seeked multiple opinions (doctors and therapists)
Speech Therapy
started the Ball Rolling on Communicative Devices
Stayed up all night to research
Still blaming myself for what happened to Natalie
Talked to anyone that would listen
The ARC for therapy items, school support, and an advocate
Therapeutic Horseback Riding/ Hippotherapy
Therapeutic Listening
Theratogs

Journey with Hope

Thursday, June 25, 2009

Studies- U of M

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